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About Chronic Fatigue Syndrome - New Information!

Builder1 started this conversation

"... XMRV had been discovered in people suffering from chronic fatigue syndrome, a malady whose very existence has been a subject of debate for 25 years. For sufferers of this disease, the news has offered enormous hope. Being seriously ill for years, even decades, is nightmarish enough, but patients are also the targets of ridicule and hostility that stem from the perception that it is all in their heads. In the study, 67 percent of the 101 patients with the disease were found to have XMRV in their cells. If further study finds that XMRV actually causes their condition, it may open the door to useful treatments. At least, it will be time to jettison the stigmatizing name chronic fatigue syndrome.

The illness became famous after an outbreak in 1984 around Lake Tahoe, in Nevada. Several hundred patients developed flu-like symptoms like fever, sore throat and headaches that led to neurological problems, including severe memory loss and inability to understand conversation. Most of them were infected with several viruses at once, including cytomegalovirus, Epstein-Barr and human herpesvirus 6. Their doctors were stumped. The Centers for Disease Control and Prevention, the nation’s presumed bulwark against emerging infectious diseases, dismissed the epidemic and said the Tahoe doctors “had worked themselves into a frenzy.” The sufferers, a C.D.C. investigator told me at the time, were “not normal Americans.”

When, by 1987, the supposed hysteria failed to evaporate and indeed continued erupting in other parts the country, the health agency orchestrated a jocular referendum by mail among a handful of academics to come up with a name for it. The group settled on “chronic fatigue syndrome” — the use of “syndrome” rather than “disease” suggested a psychiatric rather than physical origin and would thus discourage public panic and prevent insurers from having to make “chronic disbursements,” as one of the academics joked.

[...]

It’s amazing to me that anyone could look at these patients and not see that this is an infectious disease that has ruined lives,” Dr. Mikovits said. She has also given the disease a properly scientific new name: X-associated neuroimmune disease."

Read the full article in NYT...

 

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Builder1
 in response to Keep Faith...   You're welcome!
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Keep Faith
Thank you for the informative article! I've suffered with this for nearly 10 years. In he beginning, I quesioned myself, as many people did! Of course, I know now I wasn't lazy, I was ill. I truly hope these findings lead to treatment!
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momonamission

Thank you for this. I am 29 and have suffered from what the Doctors say is this.  It is so nice to see someone that actually believes it does exist.  I wonder if I will ever wake up and feel good and motivated to start a new day.  I get sick so easily and its a real downer on the self esteem.  After reading this Im going to do some more reading on the topic as Ive never really educated myself other than what my Dr. has told me.  THANK YOU THANK YOU THANK YOU!

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Starshine

Thank you for the update Emil about this!!!

I knew of someone long ago was the secretary for my ex homeopathic dr. who came down with it and nothing helped her. She had to go on disability at age of 32.

 

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